I am often asked to describe the experience of raising a child with a disability – to try to help people who have not shared that unique experience to understand it, to imagine how it would feel. It’s like this……
Sharing the poem – Welcome to Holland
Welcome to Holland by Emily Perl Kingsley I am often asked to describe the...
Our Journey with the Rare Genome Project
As a parent, you often hope you’ll have all the answers, or at least be able to find...
Lists and Calendars are Your Friend
The Medication List Managing my son’s medications has been one of the most critical...
