FEDERAL THREAT TO FAMILY CAREGIVERS

They Want to Ban Family Caregivers From Being Paid to Care

The Paragon Institute — a conservative think tank with direct ties to the Trump administration — has recommended eliminating Medicaid payments to family caregivers nationwide. For California’s 900,000 IHSS recipients, the consequences would be catastrophic.

900K

CA IHSS RECIPIENTS

73%

HAVE A FAMILY CAREGIVER

$911B

MEDICAID CUTS SIGNED INTO LAW

4.3M

AMERICANS THREATENED

THESE ARE JUST CALIFORNIA NUMBERS

WITH ANTICIPATED RAPID INCREASES IN HOME CAREGIVER NEEDS, WE NEED MORE FAMILY CAREGIVERS, NOT MORE INSTITUTIONS

This Is Not a Rumor. This Has Already Started.

The “One Big Beautiful Bill Act” — signed by President Trump in July 2025 — cuts federal Medicaid spending by $911 billion over ten years. Cuts begin taking effect October 2026. The Paragon Institute is actively pushing to ban family caregiver payments entirely as a next step.

What They’re Trying to Do

The Paragon Institute published a report in early 2026 recommending that the federal government prohibit Medicaid from paying relatives or household members for home care. They frame it as “fraud prevention” — but the real targets are California’s IHSS program and the families who depend on it.

BAN FAMILY CAREGIVER PAY

Prohibit Medicaid from paying relatives or household members for personal care services — eliminating IHSS as California families know it.

PUSH PEOPLE INTO INSTITUTIONS

Their own documents state that “institutional care is subject to more centralized regulation and oversight is easier.” They prefer institutions over homes.

GET FUNDING VIA BLOCK GRANTS

The $911 billion in cuts forces states to choose who to cut. HCBS programs — which are optional, not mandatory — are the first to go.

WORSTEN WORKER SHORTAGES

Immigration crackdowns have already pushed home care worker availability into crisis. Banning family caregivers removes the only remaining option for millions.

Stop the Federal Family Caregiver Ban

Tell your elected officials to defend IHSS and oppose federal efforts to eliminate paid family caregiving under Medicaid.

Instructions

Choose your letter type, select your state, then choose a recipient. Enter your name and edit the letter to add your story — personal messages carry more weight. Click Open in Email App to send directly, or Copy to Clipboard to paste into any email or web contact form.

This page was created by an IHSS caregiver in Santa Barbara County, California. Not affiliated with any political party.
All sources are linked and publicly available.
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